Amyloidosis Registry

Condition: Amyloidosis


Key Inclusion Criteria

  • Adult males and females listed for heart transplant at collaborating institutions
  • Diagnosed with AL or TTR amyloidosis

Key Exclusion Criteria

  • Pregnancy
  • Children

Full Study Name

A Multi-Center, International Registry of Cardiac Transplantation for Light Chain (AL) and Transthyreitin (TTR) Amyloidosis (IRB no. 32718)


The purpose of this study is to collect data (medical information) on patients with light chain (AL) and transthyreitin (TTR) amyloidosis to assess health outcomes. In so doing, researchers aim to increase their understanding of disease presentation, progression, and various treatment plans for AL and TTR cardiac amyloidosis.

Amyloidosis is a multisystem disorder in which normally soluble protein is deposited in tissues, leading to organ dysfunction. Two of the most challenging types of amyloidosis include AL amyloidosis and TTR amyloidosis; both lead to protein deposition in vital organs, including the heart.

Principal Investigator

Jon Kobashigawa, MD


Jignesh Patel, MD, PhD